the week that was

I have not written since last Monday for any reason aside from being very busy. Mlg has had the harshest reaction to the chemo so far. She has had 3 platelet transfusions in the last 6 days (they only last 30 mins for machine on to machine off). The worst part of her reaction has been the vulnerability to colds, loss of co-ordination, increase in bruising (a simple bump becomes a bruise), almost daily GSF jabs (to build her immune system) and general feeling of feeling poor. This has had a very draining effect on her.

One night last week (Wednesday or Thursday) her temperature started to rise, it was creeping closer to 38 C (37.7 degrees C), we decided to contact the local hospital and warn them that we might be coming in. Then we prepared a bag and checked her temperature every 30 minutes until 10pm then every hour till 2.30 am by then it had dropped to 36.9, so it was time for a few hours nap.

We also had chats with University College Hospital (she will be having her radio therapy there) and other specialists. And we live under the cloud of the MRI scan which is due at the end of November.

MLG is still driving us mad (in the nicest possible way), her speech is improving as are her cognitive and motor skills …… Fight the good fight cause she certainly has it in her.