I chose not to share my feeling anymore

I am closing down this blog. My daughter is developing normally, she is due to start her radiotherapy  and have a MRI scan  in the next few weeks. If all goes well the cancer will have been contained, yet with the type she it can come back aggressively and this is the heart break. I hope she lives for many years to come.

It is interesting to reflect at how saw  our little girl become ill, we asked for help from colleagues and health care professionals yet all that happened as silence or worse. Before she was diagnosed we asked for understanding as we had identified something was wrong yet once again silence or worse.

It is funny, that those who claim to believe in a more powerful force than man kind do not raise the phone, email or text to check how we are. Isolated and alone is my response.

It is funny, that many of those who claim to work in the carrying profession do not.

Living in the shadow of death, in a vacuum waiting the next set of blood  results, waiting for next MRI scan, for the temperature of child to rise my less than 1 degree, waiting, watching.

Everyone has problems to overcome, living with a child with cancer is hell on earth. Living with a child with a disability is hell and UNLESS you have personally gone through this with your own child you will NEVER be able to understand. Friends have and do provided physical and emotional support, yet I feel bitterly disappointed by many others whose professions say they would, will or shall help.  Their words are meaningless and empty. If this a wakeup call to them I question how quickly will they go back to sleep

I am choosing not to write on this blog any more for I chose not to express how disappointed I am with many people and professions I once respected, I only hope this never befalls you or your family. 

In and out

Olg girl has been going daily for transfusions yet within herself she is well. The scary thing is she is developing well, we are waiting for the MRI scan yet even if this is clear and the radio therapy goes well and all goes well due to the type and nature of the cancer in a few years time it could still kill her.

I do not wish this experience on anyone, cancer effects everyone and everything!!!

Another round of chemo

Tuesday was the 6th round of chemo, all went well, MLG's speech is coming back and developing nicely. But there was a heart breaking event, I met a mum and dad with a little girl who can be no older than 2 1/2, the girl has leukemia and the parents were devastated. The little girl's odds are, not so good, the look on the dads face was telling. His world has be shattered, his employer, unsympathetic, his life put on hold. And there was I talking to him, giving advice on how to stay positive, telling him he should set up a blog which would allow him to inform the world of what is going on.

I look every day at MLG and see her developing, walking, talking, playing, cuddling, loving. My love for her grows stronger every day, my respect for her has no bounds for the pain, fear and suffering she has to endure. 

Carpe diem-- seize the day, love every day, treat people the way you would want to be treated on your last day, for you do not know if today will be your last.