I chose not to share my feeling anymore

I am closing down this blog. My daughter is developing normally, she is due to start her radiotherapy  and have a MRI scan  in the next few weeks. If all goes well the cancer will have been contained, yet with the type she it can come back aggressively and this is the heart break. I hope she lives for many years to come.

It is interesting to reflect at how saw  our little girl become ill, we asked for help from colleagues and health care professionals yet all that happened as silence or worse. Before she was diagnosed we asked for understanding as we had identified something was wrong yet once again silence or worse.

It is funny, that those who claim to believe in a more powerful force than man kind do not raise the phone, email or text to check how we are. Isolated and alone is my response.

It is funny, that many of those who claim to work in the carrying profession do not.

Living in the shadow of death, in a vacuum waiting the next set of blood  results, waiting for next MRI scan, for the temperature of child to rise my less than 1 degree, waiting, watching.

Everyone has problems to overcome, living with a child with cancer is hell on earth. Living with a child with a disability is hell and UNLESS you have personally gone through this with your own child you will NEVER be able to understand. Friends have and do provided physical and emotional support, yet I feel bitterly disappointed by many others whose professions say they would, will or shall help.  Their words are meaningless and empty. If this a wakeup call to them I question how quickly will they go back to sleep

I am choosing not to write on this blog any more for I chose not to express how disappointed I am with many people and professions I once respected, I only hope this never befalls you or your family.