It all started for us before Easter, my little girl of just over 2 was being sick at irregular times, for no particular reason, once a week. Was it food? We weren't quite sure. Was it a virus? Some friends thought so but there was no temperature. Every night we went to sleep not knowing if she would be sick, so our sleep was light, our worry became heavier.

As time drew on (I am talking a matter of months) people and doctors said it's adenoids or  reflux. Back and forth to the doctor we went. At one stage we ask to get her referred and a doctor said 'What for?'......sorry, but who is the doctor, personal we did not care, we thought JUST GET A specialist so see her.... how much was the doctor getting paid?  How many years of training? Get on a b%$$&£ internet and look something up! She referred her to a local hospital, still nothing. By now we were so worried that we went to a private specialist ear nose and throat doctor (we live in the UK) as by now we were very concerned, we paid the money, bought the drugs still no change. Two weeks on, she had lost her balance, her ability to walk. THEN we took her to an ear nose and throat doctor, still nothing, ‘it might be neurological (a problem with the brain)’.... How little did we know or suspect!!! Through calling the doctor and hospital my wife had an appointment with the pediatrician  at 10 am the following morning....that’s the nightmare ended and started.

The little lady was given an MRI scan at 3.00, we were warned that it could take 2-3 days for the results, ½ hour later we were followed out by 3 doctors and a nurse. ‘We have something to tell you’... the wait, the look in their eyes was telling, it was just like on the films, it was from the films, it was not us, not our daughter. ‘We think your daughter has a growth’.... in our language a tumour. Full credit this time to the NHS within hours little Miss was at Great Ormond Street Hospital.