Another precious day went by. My daughter ate, laughed, jumped, ran, ate, pooood and weeeeeed. She screamed, shouted, painted, had a wash, she did all of the things a normal child would do, except that she has had 4 major ops in as many weeks + chemo. My little girl has the spirit, she has the fight, as my wife says it’s those cells, those few cells that she, we must beat.

Community nurses came round to tell us, warn us and help us. Looking into their eyes I realise that the situation is serious. We laugh, joke and have fun while they are poking and prodding my little girl, yet underneath the banter they are consummate professionals who care, who are here to help us get through this situation.

I will end the blog on a happy note. FOOOOOOOD. A food rota has been set up by friends; these very kind people who have busy lives of their own are cooking and bring round food. The food is delicious and their hard work is helping us settle back into a routine, thank you very much to all of you, it is helping in so many ways.