A face full of fish and a kiss good night

A face full of fish and a kiss good night

Mlg’s is neutropenic. Once again she has no neutrophils for the past few days, that means that she has NO immune system, she is susceptible to infections. Every day a nurse comes around and gives her a jab to raise the levels, every few days she has blood taken from her central line to test her neutrophil levels. 

That said and done, yesterday she ate a few carrots (long ones), beans noodles and one mackerel. The mackerel had been grilled, it was nice and soft, the oil was oozing out and Mlg was given a little bit at first, she asked for more, then more and THEN MORE!  There was hardly any left for my wife and I. After that hearty meal she did a little jig and jog.

Just as my wife and I were getting even more exhausted at the end of the evening and the kids were going to bed, my son shouted I need to give sis a kiss. He rushed into her room and turned to his sister and said ‘I need to give you a kiss and cuddle good night’. For a minute the world stopped, the kids gave each other the sweetest kiss and cuddle, heads together, arms wrapped around each other. Sibling love, eternal love.

Things my wife and I find hardest.

Having to wear gloves to change MLG’s nappy for the few days straight after her chemo cause she’s toxic

The fact that MLG is getting used to all the medical stuff – holding out her arm and finger for blood pressure, oxygen and temperature checks. Helping the nurse with the equipment.

The fact that MLG is now proud of her bags for her ‘wiggly lines’ (her hickman line).

Her fear when the nurse’s car pulls up, she knows the sound of each one of their cars.

Having to hold her tight to stop her struggling when her dressing gets changed or she needs an injection.

Hearing her cry ‘not me!!’ and agreeing with her, every time.

Forgetting for a minute and then remembering again.