It has been a quite a few days since I last wrote the blog
why? Effort, inclination, shock and fear. My daughter is well or so it seems. She has
not had to have any more transfusions, but she has had her fourth round of
chemo, we now have two more rounds to go until the radio therapy starts. We
were told the effects of the radio therapy, the schedule and what will happen afterwards,
more chemo. The mile stones for us are the CT and MRI scans, they strike us
with fear. We live in consistent fear of the type of cancer, it is haunting and
stalking us. MLG’s speech
is improving steadily, her ability to argue is developing beautifully, her
motor skills are great. Her ability to wind her brother up is a funny to watch
and her determination staggering. In our heart of hearts we hope it is these
attributes that will carry her, and us, through.
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