Today started very much as it finished serenely. For
breakfast we had playing, followed by cereal finished with cuddles and then we
all get got dressed. My son had a big day ahead of him he was going to see a
show with friends (getting there by buses and trains, parents were not
allowed!!) and my daughter had a play date. While they were waiting for day to truly
start, the kids played beautifully in a bedroom, fortunately my little girl did
not hear the doorbell ring, nor did she hear the door open and then close. My
daughter decided to go for a walk, on entering the short, narrow corridor she
smelled and heard the voice of someone familiar.
‘Not me, NOT ME!’ she cried and screamed ‘Don’t wan it!!’
I carried her into our living room and on the sofa sat the
nurse ready and waiting take blood from the Hickman line, all the time she was
crying ‘I’m better now, not me!’
It took minutes for the blood to be taken, the procedure is
painless so we have been told on numerous occasions and she calmed down once
she realised they wouldn’t be giving her an injection, then the nurse left. The
rest of the day flew by filled with fun and food, yet it was broken by a call
from the nurse to tell us the blood results and a call to GOSH to check if
there was bed free tomorrow for her next round of chemo – there isn’t one at
the moment. Impossible to plan and more holding our breath. My girl played with
a couple of her best friends, met and fell in love with a cousin that she hadn’t
played with before and is sleeping soundly now.
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